Michael, my 10 yo asked me this recently. He had heard me on the phone with Big Coach,
discussing the fundraiser we are doing with Parents Run AMOC (Autism Move a
thon Orange County). I used the word
“autism” quite a few times and when I was done with the call, Michael asked me
his question. And, even though I know
several parents of autistic children, and I have read several magazine articles
and blogs on the topic, I couldn’t answer the question. Here I was lighting up my facebook page blue
and posting all the “April is Autism awareness month” fliers and I was
clueless.
All I could
think of was my friend Patty's tattoo. She
recently got a tattoo for her son, who has autism, which is a colorful jigsaw
puzzle with a piece missing. All I could
think of was the missing piece. I told
him I needed to check the Encyclopedia but that I believed Autism is when a
chromosome is missing. “No, Mommy, you’re
thinking of Down Syndrome,” said my 10 yo.
“But in Down syndrome, the person has an EXTRA chromosome.” I quickly googled it on my phone. He was right, as usual. “Mom, you didn’t know what Down Syndrome is,”
said Christian, my 12 yo. I hate when
they make me feel stupid. The truth is
there are just so many things I don’t know but I am always willing to learn.
So we looked
it up on the internet. According to
Autism Speaks: “Autism
spectrum disorder (ASD) and autism are both general terms for a group of
complex disorders of brain development. These disorders are characterized, in
varying degrees, by difficulties in social interaction, verbal and nonverbal
communication and repetitive behaviors.”
I looked up hopefully from
the computer and asked Michael if that explained things. “That was just a lot of big words,” he
said. And he was right, that was about
as clear as mud.
Well, I
said, do you know anyone who is autistic?
“How would I know, Mommy, if I don’t know autism is,” he said. If this were cross examination and I were his
witness, he would have nailed that one.
I feel
really duty bound to make the most out of these teachable moments. My kids won’t always be coming to me with the
“Why and How” questions, and I do my best to answer them in a way that will
teach them something. I went to my
friend Laura’s Blog, which is about special needs parenting, specifically, her
journey with her oldest son, who has autism.
And who Michael met at a “Photo shoot” at the Boathouse recently. “I liked Jack, he was really nice,” said
Michael, “he really liked the Resolute,” which is our flagship crew shell, our
newest 8+, a 60-foot long crew shell which was in the slings. He’s got good taste, that’s for sure. We read some of the Blog entries.
I asked
Michael if reading the blogs was helpful.
“Yes,” he said. “So autism just
means you think differently?” That
sounded right. “It’s OK, mommy, I know you can’t explain everything. I just don’t understand why that’s a
fundraiser, don’t we all think differently?”
Yes, Little
Michael, we do all think differently. If
only we could all see the world through a child’s eyes.
Do join us
for the Zumba Fundraiser we will be having for the Newburgh Rowing Club and the
Parents Run AMOC, at the Stewart Gym, Saturday May 24th at 6
pm. Tickets are $15.00 each and there
will be refreshments and raffles as well.
Zumba superstar Kattya Fernandez (who has a son that coaches at NRC) and
friends have generously donated their time to these great causes. For more info, contact Mrs. Lo at juliana@lobiondolaw.com. All proceeds will be split equally between the
two groups.
Have a great
Saturday, everyone and remember to Count Your Blessings! <3 Mrs. Lo (thank you for longtime friend Patty Donnelly for use of the photo of her new tattoo)
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